Living a full life with Cystic Fibrosis

Living a full life with Cystic Fibrosis

Kasie Noel

Date of Birth: 4/4/1984

Date of Organ Donation:

10/5/2011 • 10/10/2011 • 6/13/2019

Organ Donation story:

I am 36 years old and I have a genetic disease called Cystic Fibrosis which is an incurable lung disease. It also causes digestion issues making it hard to gain weight.

Cystic Fibrosis causes lots of lung infections. After battling numerous lung infections throughout my life, the doctors told me I needed a lung transplant to live. My lung function was extremely low, only functioning at 22% and I was on 24/7 oxygen.

On October 4, 2011, I got the call that they had lungs available for me. I got my first lung transplant on October 5, 2011. The lungs failed immediately and I was put on life support for five days. On October 10, 2011, I got my second lung transplant. I was in the hospital recovering for three months. I lost all of my strength and had to learn how to walk again. The surgery was successful.

In 2017 I found out that the daily rejection medication I took caused kidney failure. I needed a kidney transplant.

I was on dialysis for a year and a half. We found out that my dad was a perfect match for me. On June 13, 2019, I received the new kidney from my dad. Almost 10 years later I live a new life thanks to organ donation.

Family and other personal information you wish to share: I was always told I would never be able to have babies and in 2013 God answered my prayers and my miracle baby was born in December 2013. My son, Eli is now seven years old. My family and husband were there every step of the way throughout my entire transplant journey.

Any other information you wish to share about Organ Donation: Please be an organ donor. A donor can save multiple lives. Let your family know that you want to be a donor. Organ donation changed my life and it could change your life or someone you love. I will forever be thankful for my donors.

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